Blog

Here you will find all my latest updates and news.... Enjoy :)

5 things you need before & after surgery

Surgery is a big thing and people forget to prepare things most of the time, especially if its their first surgery. Here is a list of items you will need before and after an operation. 

Before

1- A journal. Having surgery is a big thing and its great to write down your thoughts and notes about the surgery so that you can remember them later. I usually write down what medications I'm on, how I'm sleeping, what exercises I'm doing, etc 

2- Any equipment you need (shower chair, toilet chair, crutches, wheelchair, walker, monkey bar)

3- Someone to help you get ready and someone to be there after surgery. You will need a support system. They are a crucial part of recovery. 

4- Go and do any activities that you won’t be able to for a while. This way you won't be craving to move as much and you can get it out of your system. 

5- Research about the surgery and other peoples experiences. Some people find research very anxiety provoking but others, like myself, find it a great way to get ready for whats coming and to be informed.  (if your here and reading this, your doing a good job!) 

After

1- Loose, soft and super comfortable clothes. 

2- Make your bed a pillow castle. Load up with blankets, pillows and teddy bears. They will keep you comfortable and surrounded with warmth and plushness. 

3- Television shows and movies. House md, Criminal minds and greys anatomy kept me entertained while I was bed bound.  

4- Move the surgical site and keep it clean. This will prevent any infections or any other complications. Make sure to follow the steps that your doctor has given you but don't do too much too soon. 

5- Food you can easily prepare and eat. Soft, squishy and warm are the main three things to look for. Mac & cheese, soup, sandwiches, etc. 

Also remember, your much stronger than you think, your body can do anything, its your mind you need to take care of.

xoxo 

Hip Dysplasia Warning Signs

June is Hip Dysplasia awareness month I thought I would share some of this conditions most common warning signs in both babies and adults. 

1- Hip pain is usually associated with activities and movement. Pain deep in the front groin is most common but pain can also come directly from the joint and is located on the side of the thigh. 

2- Limping, which is only seen in children who are 2 years of age and above, occurs either because of pain when walking or it may be caused by weak muscles, limited flexibility of the joint, or bone deformity. 

3- A 'hip click' is exactly what it sounds like, with movement the hip joint makes a clicking or popping noise, however a snapping noise is normal when ligaments are still developing around the hip joint. 

4- Swayback is an exaggerated waddling limp or leg length discrepancy. It is a very common finding in people who have Hip Dysplasia, especially if found after learning to walk. Visually looking like a curve in the back, stomach pushed out and knees hyper-extended back when standing still. This can just be the normal way of standing for some people but it's best to be checked because even if there is no Dysplasia, swayback can cause back and knee issues as it is a change in posture.

You can see a picture here- http://hipdysplasia.org/developmental-dysplasia-of-the-hip/infant-signs-and-symptoms/

Hip Dysplasia that needs treatment occurs in 2-3 children per thousand and although hip instability is common in young children, if you see any of these signs please be checked by someone like your local doctor.

 

All of my information was found on the International Hip Dysplasia Institute. 

Progress..... (woohooo!!!)

Friday, May 13 2016

Over the past few weeks I have been seeing great progress in physiotherapy and I'm so happy. 

Over the past 3-4 years I have attempted to recover around 5 times but this time feels different. It finally isn't just recovering or building muscle while waiting for the next surgery, its recovering to have a better quality of life. 

In physiotherapy we have been working on my walking and doing whats called gait training. We take videos every few weeks and I try to compare the old videos to the new ones every few months. This helps because when you are doing something that happens very slowly, e.g. working out, its difficult to see the big changes and how much progress you have made and sometimes it feels like you haven't made any which is frustrating. 

But I finally looked back on a video and realised how much better my walking is. I'm not waddling like a duck and my walking just looks better in general. I've also been getting lovely comments from people who are noticing the difference. 

I'm slowly getting stronger and my nerve pain is so, so much better. 

All of this is making me so happy because I have been working really hard and doing my program every day, so to finally see it paying off it great. 

But I can imagine that one day in the future I won't be motivated so to future Mikayla, keep going. Look at how far you have come, watch an old video, think about all the amazing gains you've made and believe people when they say you are doing well.  

Keep going and you will get there. 

The Medication Debate

People feel guilty for taking medication & I don't think they should.


Think of it like having a friend.
Medicine can support you, help you, take away some pain and let you have a good life.
Just like how some people can do it on their own, other people need some support. 
Taking medication is letting something help you and it's like letting someone in, it's BRAVE.
To admit you do need some help and then not feel guilty, that's BRAVE. 
So don't feel guilt or anger towards yourself, feel proud that you are letting something help you.

It's been a big debate in the spoonie world recently and as a medication taker I really wanted to put in my two cents.

Of course I respect people who don't take medication but I want to let people know that it's perfectly acceptable to take medication.

Remember that just because one thing works for you, doesn't mean it will work for someone else. 

Candy The Life Changing Puppy...

Around 5 months ago my family got a puppy.

We had been researching for months and finally agreed on buying a Cavachon, cavalier and Bichon frise, and calling her Candy. 

For anyone who spends a lot of time at home I would highly suggest getting a pet as they keep you company and they will give you motivation and a reason to get out of bed. 

Within the short time that I have had Candy, she has changed my life. I'm out of bed more, I take her on walks, she makes me smile every time I see her and she loves me unconditionally. 

People used to tell me that they loved their pets more than the world, and I finally understand why. 

 

If you want to see some photos of her just click this link or search on Instagram @mikaylas_battle

https://www.instagram.com/p/BBBXfwltQ88/?taken-by=mikaylas_battle&hl=en

Late Night Thoughts...

The voice in my head screams at me, slowly breaking down the invisible wall that I’ve put up to protect myself.

As it shatters with one last swing of the hammer that is my brain, I’m vulnerable.

I don’t like vulnerability. It scares me.

If people could see inside my brain, they would run away. 

One last straw broke my wall.

 It feels as if the entire world has been dumped on my shoulders, I have guilt, shame and sadness sitting on my chest restricting my airways.

My eyes well up with tears and once they start it feel like they will never end.

My stomach quickly makes me feel nauseous and I start counting my fingers and how my knuckles can crack, as if they were a fine sculpture.

The voices are there.

My brain is overwhelmed and I feel as if I could collapse with exhaustion.

I feel like a scared little kid and that only scares me more, I hate being fragile, being able to break at any moment.

My mind has the ability to shatter and destroy everything in its path, leaving a clean slate the next day as I wake up and repeat the process. 

Nerve Block And Hospital Admission 27/2/16

Its been 3 weeks since my last hospital admission and I was wanting to give a little update. 

I was in the middle of a big nerve flare when my parents called my surgeon and he agreed some intervention was needed. He arranged for me to be admitted into the hospital and then be given ketamine, a pain relief drug stronger than morphine. Once I arrived at the hospital I was given a room, the doctor was called to put my IV in and the nurses had ordered the ketamine. Getting the cannula in was difficult because I was dehydrated but the doctor managed and then the nurse hooked up the ketamine. The plan was to increase my dosage by 1ml every day until the pain was under control. When you finally get pain relief every day is easier than the next. So slowly the pain dissipated over the days and I was being given 5mls an hour by the fourth day. 

At this point I met my new acute pain doctor, who agreed to take my case, and whenever I need to be admitted he has the rights to admit me and put me on Ketamine. He was lovely and was really pleased that I'm vegetarian because meat, dairy and wheat raise the bodies inflammatory markers and my body reacts very badly to inflammation. He also changed my medications. I was taking Lyrica (pain), Melatonin (sleep), Fluoxetine (anti-depressant) and Palexia (another for pain). Now I’m on Lyrica and Endep (for pain, anti-depressant and sleep). Over all I was really happy with his new doctor. 

On the third day of my admission I was taken by ambulance to a different hospital to have a nerve block done on my Sciatic nerve. The procedure went as planned and I got to have a couple of hours sleep whilst waiting for the ambulance to come back and take me back to the other hospital !

Once I was up to 5ml’s an hour of Ketamine and the doctor was happy with how I was reacting they started to wean me off of it. My veins tissued (burst pretty much) four times and Dr. Death as I like to call him, managed to let the fluid leak into my tissue until there was a big bubble under my skin, it hurt ! 

After a very long 8 days, not much sleep, my birthday, 1 surprise party and a lot of Ketamine, I was able to go home. 

Since then I have done very well. I have been going to lots of school, getting my homework done and playing with my dog, Candy. 

Thanks for reading this very long post, 

Mikayla xoxo 

Instagram- @mikaylas_battle

The Impact

Last night some slight pain returned, and it was a wake up call. 
I realised,
I'm not invincible. 
That the high I've been feeling without the pain, was going to crash eventually and all I was doing was making the impact worse every time I thought pain couldn't touch me.

Good Things About Hospital? Yes!

Lot's of people think hospital sucks, and it does, but there are some good things that can come out of being chronically ill, in and out of hospital or even just being there for a small issues like a broken leg. So I want to show you the good in the bad and how I find good things in the hospital. 


1- Friends! I've met some of my best friends through my inpatient stays, they understand me and I can talk about medical things without sounding crazy 😍


2- Food- at my hospital the Mac and cheese is pretty good along with the jelly 🍭


3- Thinking. Your able to think about what you want to achieve, how you want to live and how you would like to deal with things 🌝🌈


4- Nurses. They are amazing and nobody can deny that!! Nurses do the best and worst job anyone can have. They see people decline but also beat all the odds, they are blessings! 👼


5- Free time. I like to colour, write, edit and put together photography, read (if I can) and catch up on television. 💁🏻💻


PS- I also recommend taking in a diary to write in about anything, nail polish, fluffy socks and lips balm if your going in soon. 💖

 
Read more at http://websta.me/n/mikaylas_battle#pxuL6RbQpJqDoHZT.99

Empathy

Everything is still yet buzzing at the same time.

"There is nothing more we can do for you."

These are the words many pain patients have heard over and over.

What the doctors don't understand is that we are real people, not just cases.

In the medical field empathy is a necessity but it so hard to find.

If it was water, there would be a drought.